OCT. 11, ’15 LOOK OUT– I’M DRAGGING OUT THE SOAP BOX!!!!!!!!

OCT. 11, ’15 LOOK OUT– I’M DRAGGING OUT THE SOAP BOX!!!    🙂

I KNOW I HAVE SO MANY MCS SISTERS WHO LOVE IT—- WHEN I DRAG OUT MY SOAP BOX      🙂         ——- & THIS MORNING—- THE SOAP BOX IS GETTING PULLED OUT!!!!!  STEP BACK A FEW PACES— IF YOU ARE AFRAID OF WHAT I MIGHT BE SAYING—-   AND IT SEEMS THERE ARE SEVERAL — WHO HAVE NOT READ MY BLOG ENOUGH TO KNOW—- THAT WHEN I TYPE IN ALL CAPS— I’M NOT YELLING—- I CAN’T SEE—–BUT YOU WILL KNOW WHEN I AM YELLING ON THIS BLOG—– OK????????

soap-box

WE HAVE BEEN BUSY WITH THE MOVE FROM BRANSON, MO. TO BURNS, KS. &  AND I HAVE NOT REALLY DONE A LOT OF POSTING ON THIS BLOG OR READING MY OTHER MCS SISTER’S BLOGS– OR FOLLOWED OTHER FRIENDS BLOGS—- NOR HAVE I ANSWERED ALL THE E-MAILS—-  BUT I APPRECIATE YOUR CONTINUED SUPPORT– & PRAYERS——-

OK— GARY IS OFF THE PHONE— & I TOLD HIM— I AM DOING A BLOG POST—& TO PLEASE HELP ME– SO MCS BRAIN FOG DOESN’T TAKE OVER THIS BLOG POST— LET ME HAVE NO INTERRUPTIONS TO BE ABLE TO THINK——

SO—- LOOK OUT—- I’M STEPPING UP ON MY SOAP BOX—– NOW IS YOUR CHANCE TO ESCAPE– THIS BLOG—- OR — IT WILL BE TOOOO LATE—— HERE WE GO————-

LATELY I HAVE BEEN ASKED IN PERSON & BY E-MAILS—- WELL—- WHAT ARE YOUR MCS SYMPTOMS???????

(OH—- I SEE MANY OF MY MCS SISTERS BACKING UP FROM THEIR COMPUTERS—- THEY HAVE AN IDEA WHAT IS COMING!!!   🙂  )

I RECENTLY HAD A WOMAN SAY TO ME—– WELL HOW DOES YOUR MCS EFFECT YOU—- DOES IT MAKE YOU SNEEZE????   WHY DON’T YOU JUST TAKE AN ALLERGIE PILL— OR TAKE ALLERGIE SHOTS    –LIKE I DO??????????

Multiple Chemical Sensitivity is Poisoning- Not Allergy!

When you choose to use fragrances, chemicals, or pesticides, You are not simply making a choice for yourself, You are making a choice for everyone around you!!!!

Researchers Confirm Multiple Chemical Sensitivity is Poisoning, Not Allergy

Researchers from Japan have confirmed that multiple chemical sensitivity (MCS) is not an allergy.Rather, MCS is a condition in which individuals suffer with symptoms when exposed to low levels of toxic chemicals in the environment. Several studies have shown that people with MCS are unable to break down these toxicants efficiently, a function the liver normally serves.

Researchers suggest that patients having allergic diseases may easily suffer from MCS at the same time or MCS may strengthen symptoms of allergic diseases. And though MCS and allergies may both occur in some people, they do not both occur in all people with one or the other condition.

Individuals who visited a specially built facility for Sick House Syndrome were examined in the study. Allergic rhinitis was the most popular allergic disease in the possible cases of MCS.

The key is understanding which is which so that proper targeted treatments may be selected. Testing is critical to making a proper diagnosis.

There are two types of reactions that may occur to the same chemical in different individuals:

Chemical Allergy

Toxicity (MCS)

In chemical allergy, the individual is actually allergic to the chemical and immunoglobulin E (IgE) is elevated. This is the type of reaction that would most readily respond to treatments such as low dose antigen therapy (LDA), nambudripad allergy elimination technique (NAET), and other allergy desensitization techniques.

In MCS, IgE is not elevated and the reaction is not allergic in nature. Often the reaction is of a toxic nature and results in neurological symptoms as opposed to typical allergy symptoms such as sneezing, itching, watery eyes, and inflammation.

This neurological effect is what makes MCS disabling. The lack of IgE (allergy) renders MCS irresponsive to such treatments as LDA and NAET. Avoidance of chemical triggers is essential to maintaining functional capacity. This is often difficult to achieve as fragrances and chemicals which have neurotoxic effects are all around us.

It may appear that MCS is improving from allergy treatments in individuals who suffer from both allergies and MCS. When the allergic condition improves, it is not impacting the MCS condition as severely. The converse may also be true.

The most important information this study provides is confirmation that MCS symptoms are not easily treatable with allergy remedies. This also negates the perception that individuals with MCS overreact to what ails everyone. MCS is, based on studies showing impaired detoxification, quite literally, more attuned to chronic poisoning.

 

Multiple Chemical Sensitivity (MCS) is basically a subset of Environmental Illness (EI), which is caused by living in a toxic world. The chemicals that were synthesized after World War II (including, pesticides, synthetic fragrances, cleaning products, detergents, etc.) are mostly “petro-chemicals” (petroleum based) and are quite toxic to humans. There have been virtually no studies done on the majority of these chemicals to see how they affect humans – the industry just placed the chemicals in the environment with the assumption that they are “safe, till proven toxic”, instead of the other way around. One of the biggest offenders is PERFUME and other scented products. Did you know that many of the ingredients in your perfume are the exact same ingredients found in GASOLINE??!! I didn’t either! The scary thing is that the perfume industry is NOT REGULATED at all – they can put any number of chemicals in fragrance without revealing what those chemicals are – or how they affect humans. We humans are all participating in a giant “lab experiment” against our knowledge and against our will, and it’s making some of us VERY sick.

Those of us who are becoming chronically ill from these chemicals are similar to the “canaries in the coal mine”. Coal miners would take a canary into the mines with them to warn them when the air became toxic. They knew that when the canary stopped singing or died, it was time to get out before it affected them as well. We “human canaries” are here to warn the rest of you that, unless you start making changes and avoid as many toxic chemicals as possible, you too may become very sick. Non toxic living

is actually much “simpler” and cheaper!

Don’t be fooled, these chemicals are affecting ALL of us in some way or another. Think about the last time you got a headache for no apparent reason. Could it be possible that someone had recently sprayed perfume or pesticides near you without you knowing it? Had you recently used scented laundry detergent or Clorox to clean with? Do you get headaches or feel nauseous from being around people wearing perfume or cologne? Do you feel you need to hold your breath when you go down the detergent aisle at the grocery store? All these things are your body’s way of telling you something is wrong with the air you’re breathing. While an MBA in health care may help you understand the whys and wherefores of the medical issues it doesn’t take a masters degree to listen to your body and know that things are not right.

It’s like playing “Russian Roulette” – you never know how long your immune system can hold out before breaking down. Some people may never reach the point of “chronic illness” that I did – but most people are being affected, possibly without realizing it. Cancer has increased dramatically since World War II (after all the chemicals came out). Attention Deficit Disorder is on the rise (more and more of our children are being put on toxic, brain-altering drugs like Ritalin when simply cleaning up their environment could solve their problems). Chronic Fatigue Syndrome, Alzheimer’s Disease, Allergies, Asthma, Lupus, Fibromyalgia, and Multiple Sclerosis are also increasing. All these illnesses could very well have a chemical connection to their cause or, at the very least, these patients would benefit from using less-toxic products. Pretty much any “immune system” disorder could be helped by a cleaner environment and by using safer products.

The products we use on our skin are absorbed directly into the bloodstream (the reason why nitroglycerine, nicotine, and hormone patches work). The chemicals we breathe (such as perfumes, formaldehyde, pesticides, etc.) all go straight to our brains and can cause low-level to severe damage – similar to how someone can snort cocaine or glue to get a “high”. Start reading labels – check for petro-chemicals, formaldehyde, and fragrance, and avoid them as much as possible. A clue that an ingredient may be a petro-chemical is the “prop” prefix. A clue that an ingredient releases formaldehyde is “Quaternium”. Be careful about products labeled “fragrance free” or “unscented”. Don’t trust them! Read the label and be sure they don’t list “fragrance” or “masking fragrance”. Don’t put anything on your skin you’d be afraid to eat, because the end result is the same!

Before I got sick, I had no clue that I was slowly being “poisoned” by products that I assumed were “safe” since they were on the market! If this could happen to me – YOU COULD BE NEXT.

One more time MCS is NOT A FRECKING ALERGY!!!!!!!! | sondasmcschatter

https://sondasmcschatter.wordpress.com/2013/01/11/one-more-time-mcs-is-not-a-frecking-alergy/

SOOOOOOOOOOOO MANY WHO HAVE MCS DO HAVE ALLERGIES—- BUT MCS IS NOT— NOT — NOT — NOT ALLERGIES!!!!!!!!!!!!!!!!!!!!!

WHEN PEOPLE SAY———- TO ME—– WHAT ARE YOUR SYMPTOMS???????

IT TOTALLY DEPENDS—  BY THAT I MEAN—— IF SOME ONE SPRAYS TOXIC KILLING BUG SPRAY INTO YOUR FACE—–  WHAT ARE YOUR SYMPTOMS??????? (BY THIS I MEAN— ANY TYPE OF TOXIC CHEMICALS– FROM PERFUME  TO FABRIC SOFTENERS SHEETS— TO ANY FORM OF TOXIC CHEMICALS– BUT WHEN I SAY— YOUR PERFUME IS THE SAME— AS SPRAYING BUG SPRAY IN MY FACE— SOME PEOPLE SEEM TO UNDERSTAND THIS!)

 

IF SOMEONE KEEPS SPRAYING TOXIC BUG SPRAY INTO YOUR FACE & YOU CAN’T ESCAPE IT— WHAT ARE YOUR SYMPTOMS???????????

IF YOU HAVE NO PLACE ON EARTH TO ESCAPE –SOMEONE SPRAYING TOXIC BUG SPRAY INTO YOUR FACE– WHAT ARE YOUR SYMPTOMS???????????

IF YOU KEEP BEING POISONED OVER & OVER & OVER & OVER & WITH TOXIC POISON & NO SAFE PLACE & YOUR BODY HAS NO PLACE TO REBUILD & REPAIR– WHAT ARE YOUR SYMPTOMS???????????? 

OK— MCS SYMPTOMS FOR ME– HERE ARE JUST A VERY VERY VERY FEW! AND I SAID THESE ARE MY MCS SYMPTOMS I HAVE HAD ———

CAN’T BREATHE—— CAN’T GET AIR——– & FEEL LIKE SOME ONE HAS THEIR HAND OVER MY FACE— OVER MY NOSE & MOUTH SHUTTING OFF THE AIR—– & HAS THEIR HANDS AROUND MY THROAT SHUTTING OFF THE AIR– AS MY THROAT IS SWELLING SHUT!!!!!!!!!!! 

THIS SOMETIMES  LEADS TO RAPID PULSE & SOME TIMES EVEN PANIC ATTACKS!!! 

EYES BURN & CAN’T SEE—– SOME TIMES  WIT IN A FEW MINUTES OR EVEN THE NEXT DAY— MY EYES SWELL SHUT!!!!!! 

TALKING ABOUT EYES– MCS– HAS EFFECTED MY EYE SIGHT— I HAVE PROBLEMS SEEING— I HAVE BLACK SPIDER VEINS THAT PASS OVER THE FRONT OF MY VISION — & I TRY NOT TO RUB THEM TO REMOVE THE BLACK SPIDER WEB IN FRONT OF MY EYESIGHT——- AS IT ONLY MAKES IT WORSE– SO I TYPE IN ALL CAPS TO BE ABLE TO SEE WHAT I HAVE TYPED—- BUT SOME TIMES I REALLY AM YELLING—– YOU HAVE TO GUESS WHEN!!!!    🙂

HEADACHES—- I DON’T REMEMBER NOT HAVING ONE—— IT IS ONLY DEGREES OF A HEADACHE!!!!!!!!!!!  DEPENDING ON  DEGREES OF TOXIC EXPOSURE!!!!!!!

SOMETIMES MY BODY REACTS LIKE THE WORSE CASE OF THE FLU—- UPSET STOMACH— THROWING UP—- NOT ABLE TO KEEP ANYTHING INSIDE OF MY BODY— NOT ABLE TO CONTROL MY BLADDER & MY BOWELS—- FOR DAYS OR EVEN WEEKS—OR EVEN MONTHS———-

SOMETIMES— I SWELL UP LIKE A TOAD—— I CAN’T BEND MY FINGERS ON MY HANDS– I CAN’T WALK ON MY FEET——  MY EYES SWELL SHUT– MY THROAT SWELLS TO THE POINT THAT I KEEP DRINKING SIPS OF WATER– IN ORDER TO FEEL LIKE IT IS OPEN AT ALL!!!!!!!!!!

RINGING IN MY EARS ALL THE TIME—-

AND WHEN I AM EXPOSED TO REALLY STRONG CHEMICALS SOMETIMES —– I COLLAPSE—-  I CAN FEEL MYSELF FALLING BACKWARDS— BUT I CAN’T STOP IT—- I CAN’T HEAR– I CAN’T SEE—– BUT I KNOW— WHAT IS GOING ON— EVEN THROUGH I CAN’T SEE OR HEAR!!!!

ALWAYS — ALWAYS— ALWAYS— EVERY EXPOSE NO MATTER HOW BIG OR SMALL—- I CAN’T BREATHE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

ALSO— EXPOSURES EFFECT MY BALANCE MOST OF THE TIME— I FEEL OFF BALANCE— OR DIZZY—— MOST OF THE TIME— MY WORLD IS SPINNING—- YOU WILL SEE ME GRAB— FOR ANYTHING TO TRY TO STEADY MYSELF!!!!!!!!

SPEECH—- SOMETIMES— I CAN’T TALK—- I KNOW IN MY HEAD WHAT I WANT TO SAY——- BUT I CAN’T SAY IT—- SOMETIMES— I HEAR MY SELF— TRYING TO TALK & IT IS NOTHING BUT GIBBERISH—- NO WORDS— JUST SOUNDS!!!!

SOMETIMES WHEN I HAVE BEEN SICK FROM EXPOSURE TO CHEMICALS— I HAVE NOT BEEN ABLE TO TALK FOR WEEKS OR MONTHS—- I SOMETIMES HAVE BEEN ABLE TO WRITE WORDS– FOR GARY TO FIGURE OUT WHAT I’M TRYING TO SAY TO HIM!!!! AS I COULD NOT SPEAK— OR EVEN WRITE A SENTENCE!!!

I HAVE BEEN IN A STORE– & BEEN EXPOSED— & NOT KNOW HOW TO GET OUT OF THE STORE—– I HAVE EVEN NOT BEEN ABLE TO WALK OR TALK— OR FUNCTION!!!!!  SOMETIMES WHEN THE EXPOSURE WAS NOT REALLY BAD– I HAVE BEEN ABLE TO CALL GARY ON MY CELL PHONE — AND HIM BE IN ANOTHER PART OF THE STORE & HE COME & GET ME— & GET ME OUT OF THE STORE & INTO FRESH AIR!!!

DRIVING—- FOR MOST OF THE PAST 10 TO 12 YEARS I HAVE NOT DRIVEN MUCH— AS I HAVE HAD BAD EXPERIENCES– OF DRIVING INTO TOXIC CHEMICALS   & NOT KNOW WHO I WAS— OR WHERE I WAS GOING— OR HOW TO GET HOME AGAIN———– SINCE WE MOVED TO KANSAS—- I HAVE DRIVEN MORE THEN I HAVE IN 6 WEEKS THEN I HAVE IN 10 YEARS!!!!!  I EVEN HAD TO DRIVE THE RV PULLING A TRAILER FROM BRANSON, MO. TO  OUR  NEW HOME IN KANSAS—- & MORE THEN ONCE—- SOME OF THE TRIPS— WERE NOTHING BUT A TOTAL COMPLETE NIGHTMARE FOR ME—- OTHER TIMES I DID FINE!!!!! IT DEPENDED ON MY IMMUNE SYSTEM BEFORE THE TRIP & THE EXPOSURES I HAD ON THE TRIP!!!!  ONE TRIP I CAME SO CLOSE TO HAVING A COMPLETE MELT DOWN— MY IMMUNE SYSTEM WAS BAD—- & GARY GOT SO FAR AHEAD OF ME IN THE MOVING TRUCK I COULD NOT SEE HIM——- ALL I CAN SAY IS— JESUS WAS NOT MY CO-POILOT  — HE DROVE THAT BABY ALL THE WAY TO KANSAS  FOR ME– OR I WOULD NOT HAVE MADE IT!!!!!!!!!!!!!!!!!!  JUST THAT PLAIN & SIMPLE— I’M SURE GARY HAD NO REAL IDEA– OF THE TROUBLE I WAS REALLY IN THAT TRIP!!!!!

PAIN——- CONSTANT—- IT NEVER GOES AWAY——– I’M SURE IT IS THE POISON IN EVERY ORGAN OF MY BODY!!!!!!!!!!!!!!

EXHAUSTION—- MOST ALL THE TIME—— EVERY SINGLE THING I DO IS SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO FAR BEYOND AN EFFORT MOST ALL THE TIME— EVERYTHING I DO I HAVE TO FORCE MY SELF TO DO—— I DON’T FEEL LIKE DOING ANYTHING EVER ANY MORE— SOMETIMES IT IS JUST  LESS OF AN EFFORT!!!!!!!!!!

BRAIN FOG——— THIS UPSETS ME THE MOST—— I AM A CONTROL PERSON—-  I LIKE TO BE IN CONTROL OF EVERYTHING—– BRAIN FOG—— SOME TIMES I AM IN CONTROL OF NOTHING—– TOTALLY NOTHING—- SOMETIMES– I CAN’T TELL YOU WHAT MY NAME IS——– OR WHERE I LIVE—– OR ANYTHING—– THIS IS SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO HARD FOR ME—— I KNOW THINGS ARE NOT RIGHT— & CAN’T DO A DAMNED THING ABOUT IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  BRAIN FOG SO BAD—  SOMETIMES I CAN’T EVEN REMEMBER HOW TO PRAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I BELIEVE WHEN THE TEARS FALL—–& – THE BRAIN FOG IS SO BAD—- I HAVE NO IDEA ABOUT ANYTHING— GOD STILL KNOWS MY PRAYERS THROUGH MY TEARS!!!!!!!!!!!!!!!!!!!!!

HERE IS WHEN I WROTE ABOUT :

My blackest hole with MCS–

I have been asked to write about my worst experience with MCS– I’m not sure I can go there– because maybe I don’t want to be judged– I sure as hell don’t want to be mocked– BUT– I prayed about this & God assured me I need to share this– as I didn’t go through it to not learn compassion & learn to give HOPE– to everyone who has any form of MCS– so here it comes dead straight from my heart–

Several years ago Gary & I had an INN SITTING BUSINESS– what is that– well we had owned lodging– & knew you could not find anyone to take over your business so you could escape– so we started an Inn sitting business where we would go in & take over– & the owners could walk out & leave their business with us & for what ever reason– for a few days or a few weeks– well — we went to Cripple Creek Colo to an Inn– & they had new carpet– new drapes– new bedspreads– new paint– the biggest toxic chemical mess in the world– & enough formaldehyde in that place to embalm a small city!! Needless to say I didn’t last long– & Gary loaded me up in the car & drove like hell all the way back to our  home in Kansas– I thought I would get better– but I didn’t– the chemicals affected my nervous system –OK– I could not breathe– my throat was almost totally swollen shut-my eyes were almost totally swollen shut– brain fog– rash my skin looked like I had a birth mark over all of it– as I was bleeding under my skin– I was swollen up like a big toad– ALL MCS symptoms- you have ever read about– BUT– for the very first time– the chemicals affected my total nervous system– I could not sit– lay down– wear clothes– have anything touch me-could not take a shower– wash my hair– and I could not keep anything inside of me– I could not eat– all I did was drink water– then the PANIC ATTACKS STARTED–  the worst I have ever experienced in my life– it was like riding a bucking horse — a terrible mad violent bucking horse– you thought this horse will finally get tired & stop this– but if the attacks stopped it was only for that damned horse to get it’s breath & go again– & I could not breathe it was like I could see my self as a gold-fish who had jumped out of the fish bowl & could no longer breathe without water– & riding a bucking horse at the same time– All who know me well- know I’m very independent & bullheaded &  if I make up my mind to do something –I very well can damned do it–BUT– now- I was not in control of any action of my body & I was lost– me who is always in control– could not control these panic attacks!! And I had all other MCS symptoms you have ever read about &  heart pumping– etc- etc etc– & I can’t keep anything in my system– I can’t lay down– I can’t rest– I can’t sleep–I can’t eat–

I had a health professional say– we have got to get her to the hospital– so we went– & they had NO PROTOCOL for anyone with MCS– they took samples of me– & then as I heard some one in the next room say– she is going to die– I said to Gary get me out of here– & he did — from the tests we found my body was feeding on it’s self– & I had water toxicity– from only drinking water-as it was all I could keep inside of me- also still having panic attacks sooooo bad– I really wanted to die– this had gone on for many- many -many days now– & I prayed that night for God to please -please– take me–or get me to some real help– And it must not have been my time to go– as God sent me to Dr Ed McKenzie in Holton, Ks. it was a real struggle to get clothes on– & sit in a car & close the door– & ride from our home in Cottonwood Falls, Ks. to Holton, Ks.– Doc Ed was a friendly face– I don’t remember any thing he said to me–  EXCEPT– when he took my hand & looked me in the eyes & said– You are going to get better— OH MY GOSH— HOPE– HOPE -HOPE- the first time anyone had given me HOPE!! I got my mind around that– HOPE– those damned panic attacks– I can ride them–  I can make it!!!! Doc sent home Standard Process Complete with us  & said– mix this & at first just try a tablespoon full & see if you can keep it in you– so every hour or so I took a tablespoon of natural healthy  Standard  Process Complete– & it finally stayed in me–I lived in our rocking chair for weeks– & weeks– when I wasn’t pacing the floor  & riding out those damned panic attacks!!! I finally got in my mind– go ahead & buck & I’ll spur ya– now give me all ya got & lets get it over with– & I would ride that wave of panic attacks!! I finally saw HOPE in Gary’s eyes when I could keep something inside of me– & I could talk in some form of a sentence by placing more then 2 words together– & could dress myself– when he said– we need to go to see Dr Ed today– I think we went every other day maybe every day– for weeks– then months–

I remember some time– Gary had an old people stool in our shower– & asked if I wanted to try getting clean– some point– I remember being able to let water hit my skin with out it feeling like a million hot coals burning me–& sitting off more panic attacks–  I remember some time I was even able to put my head in the kitchen sink & let water hit my head– no shampoo– could not take any thing but water on my head same as no soap or chemicals when I took a shower–

I remember when I finally tried to eat a cracker this was after weeks & weeks -& weeks- & only a crumb & it tasted so bad– as I had not had any other nourishment in me except Standard Process Complete for maybe several months!!

We removed every single scented thing from our home at that time– we took out every single chemical– I sprayed Vinegar in the house in a spray bottle to neutralize any other smells– I did that in the car to be able to go to the doctor’s office–

And I journaled to keep my mind– I wrote notebook– after notebook– as I could still not put together a complete sentence– in talking!!  I would write– rock in that rocking chair– & pace & ride out those damned panic attacks– & write Gary notes as I still could not put the words together to come out to make sense in talking!!

Gary for the first time in our married life had to take care of  me instead of me always taking care of him–& he had to take on responsibility he had never ever done in our marriage before– & I could see he was scared to death most of the time– & I could not talk or have enough strength in me at that time to give him any HOPE as it took all the HOPE I had to just make it minute by minute in my own life!!

I was soooooo sick for sooooooo long– it is now a blur– it is a dark hole– that I won’t let myself get sucked into ever again in my life– I will never ever let myself be exposed to all those chemicals– I will always keep a “safe home” & I’ll fight for my  chemical free “safe home”– as it is all I have to protect myself– it is my only safe place in this world–  And I won’t let people in my safe home ever again that have chemicals on them–

When Gary & I travel we travel in our RV our safe home on wheels!!

I have kept all those journals I wrote for weeks & months– but I have never ever gone back to reread them– WAY TOOOOOOO DARK OF A PLACE— Praise God I can’t even remember it all!!

When people say– what makes you think you are an expert on MCS to help other people–

WELL I HAVE LIVED WITH MCS IN ONE FORM OR ANOTHER FOR OVER 50 YEARS-

AND I HAVE BEEN IN A HELL HOLE– FROM MCS– THAT I NEVER EVER WANT ANYONE ELSE TO BE IN– – &  IF SOMEONE HAD NOT HAVE GIVEN ME “HOPE”– I WOULD NOT BE HERE!!!  I remember the first day I was able to laugh again–

(There are tears are hitting my key board as it write this)– all I can say is IF I HAD NOT KNOWN JESUS CHRIST AS MY LORD & SAVIOR — I COULD NOT HAVE MADE IT!!!

( Thank you  JESUS- & Thank you Dr. Ed McKenzie — & Thank you Ed Pope for letting God use you- to lead me -to Jesus Christ as my Lord & Savior & thank you Gary Bruce for  loving me & being my best half .) I love ya all!!!

It is still very hard when people have NO FRICK’EN CLUE WHAT MCS IS– or  how it can try to control our life– & how many people continue to use all the toxic chemicals & fragrances that are killing ALL OF US!!!!!!!!!!!!

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THAT IS WHAT I HAVE SHARED ABOUT MY EXPERIENCE WITH MCS AT JUST ONE POINT IN MY LIFE——————–

WHEN PEOPLE SAY TO ME—- WELL WHAT ARE YOUR SYMPTOMS– DOES IT MAKE YOU SNEEZE??????????

YES– SOME TIMES IT MAKES ME SNEEZE——- BUT IT IS NOT ALLERGIES——PEOPLE ARE USING TOXIC KILLING CHEMICALS ALL THE TIME & THINKING NOTHING ABOUT IT——  YOU ARE KILLING US ALL—- SOME OF US FASTER THEN OTHERS”

I HAVE SAID MANY TIMES :” I will never ever let myself be exposed to all those chemicals– I will always keep a “safe home” & I’ll fight for my  chemical free “safe home”– as it is all I have to protect myself– it is my only safe place in this world–  And I won’t let people in my safe home ever again that have chemicals on them–

WELL I HAVE MADE THE MISTAKE OF LETTING PEOPLE INTO MY MCS SAFE HOME———–

3 FRONT DOOR 1 REDONE

THESE SIGNS ON MY FRONT DOOR——- MOST DON’T THINK THEY APPLY TO THEM!!!!!!!!!!!!!!!      🙂      YOU KNOW THEY ALL KNOW MORE ABOUT YOU—– THEN YOU DO!!!!!!!!!!!!!!!!!!!!!!!!!!!    🙂

OR I’M THE CRAZY WOMAN WITH THE SIGNS ON HER FRONT DOOR!!!!!!!!!!    OH– MY I WONDER WHY I HAVE THOSE SIGNS ON MY FRONT DOOR!!!!!!!!!!!!!!

I HAVE LET PEOPLE INTO MY  MCS SAFE HOME I NEVER SHOULD HAVE—– WHO MADE ME VERY VERY VERY VERY VERY ILL—————— AND DIDN’T GIVE A RATS ASS– BECAUSE THEY  DIDN’T UNDERSTAND & DON’T UNDERSTAND & MAY NEVER UNDERSTAND!!!!  🙂     I HAVE HAD PEOPLE SAY— WELL YOU LET GARY INTO YOUR MCS SAFE HOME— DOESN’T HE BRING IN TOXIC THINGS TO YOUR SAFE HOME———— DUH———– WELL YES—— BUT I LIVE WITH HIM—– I DON’T LIVE WITH YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

THERE ARE ABOUT A MILLION MORE SYMPTOMS OF MCS—- ONE OF MY MAIN HEALTH PROBLEMS– ARE MY ORGANS ARE POISONED—— MY POOR LIVER IT IS ALL IT CAN DO TO KEEP WORKING—— TAKING THE POISONS OUT OF MY SYSTEM– I KEEP GETTING EXPOSED TO——– MY LIVER HURTS—- ALL THE TIME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  ALL THE TIME!!!!!!!!!!!!!

I DON’T EAT MEAT——– I TRY NOT TO EAT CHEMICALS——— I TRY TO REBUILD THE GOOD GUYS BACK INTO MY STOMACH & GUT— I TAKE NO CHEMICAL DRUGS AT ALL OF ANY KIND EVER!!!!!!!!!!!!!!!!!!!!!!!!!!

WE DOCTOR ALL NATURAL—- WE TRY TO EAT ALL NATURAL—– WE FILTER OUR AIR– & OUR WATER & TRY TO BE CAREFUL OF OUR DIET IN ALL WAYS!!!!!!!!

NOT ALL WHO HAVE MCS HAVE IT TO THE SAME DEGREE——– I AM ONE WHO IT IS LIFE THREATENING——- EVERY SINGLE DAY—- I KNOW IS A FIGHT—– TO STAY AS HEALTHY AS POSSIBLE!!!!!!!!!!!!

SOME MCS– IS NOT LIFE THREATENING TO THEM———

I HAVE MCS SISTERS WHO LIVE IN THEIR VAN IN THE MIDDLE OF THE DESSERT TRYING TO  FIND A SAFE PLACE TO STAY ALIVE!!!!!!!!!!!

I HAVE MCS SISTER ALL OVER THE WORLD—– EACH HAVE BEEN EXPOSED TO DIFFERENT TOXIC CHEMICALS–   OR MOLD— THAT HAS CAUSED THEIR MCS!!!!!

EACH HAS THEIR OWN UNIQUE STORY——- EACH FIGHTS EACH DAY— IN THEIR OWN WAY TO STAY ALIVE OR AS HEALTHY AS POSSIBLE!!!!!!!!!

THROUGH THIS BLOG——– I HAVE BEEN BLESSED TO MEET NOT JUST HUNDREDS BUT—- THOUSANDS OF PEOPLE ALL AGES— RACES & BACKGROUNDS THAT ALL SUFFER FROM MCS!!!!!!!!!! AND ALL OF OUR SYMPTOMS ARE DIFFERENT— & AT DIFFERENT TIMES IN OUR LIES & DIFFERENT DAYS IN OUR LIVES!!!!!!!!!!!

I HAVE MCS SISTERS WHO CAN NO LONGER LEAVE THEIR MCS SAFE HOMES AT ALL—- FOR ANY REASON———-

IN THE THREE YEARS I HAVE BEEN DOING THIS BLOG—- I HAVE HAD SEVERAL MCS SISTERS DIE— BECAUSE OF  TOXIC CHEMICAL EXPOSURES!!!!!!!  SO WHAT ARE THE SYMPTOMS OF MCS——–   ALL TYPES OF SYMPTOMS—— & ALL ARE SERIOUS!!!!!!!!! VERY VERY SERIOUS!!!!!!!!!!!!

SO WHEN ARE PEOPLE GOING TO WAKE UP—— & STOP USING THE TOXIC KILLING CHEMICALS????????????

I CAN’T TEACH ANYONE ANYTHING———

BUT BET YOU SWEET BUTT——— I’LL BE ON MY SOAP BOX—- AS LONG AS I’M ALIVE———- THROWING OUT THE INFORMATION——— AND PRAISING GOD——- WHEN THE SCALES ARE REMOVED FROM PEOPLE’S EYES— & THEY WANT TO MAKE A CHANGE IN THEIR LIVES & STOP THE STUPIDITY —– & USE OF POISON!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

EVERY SINGLE PERSON ON THIS EARTH——– CAN MAKE A DIFFERENCE— IF THEY CHOOSE TO!!!!!!!!!!!!!!!!!!!!!!

THEY CAN STOP WEARING & USING TOXIC SCENTS—— THEY CAN STOP USING TOXIC CLEANERS—— ETC– ETC—-

When you choose to use fragrances, chemicals, or pesticides, You are not simply making a choice for yourself, You are making a choice for everyone around you!!!!

I PRAY SOME DAY—–SOME PEOPLE WILL THINK BEFORE THEY USE TOXIC KILLING CHEMICALS!!!!!!!

WHEN WILL THEY WAKE UP THEY ARE POISONING THEM SELVES– THEIR FAMILIES—– & EVERY SINGLE LIVING THING AROUND THEM!!!!!!!!!!!!!!!!!!!

DIDN'T GIVE UP

THAT IS MY LIFE’S  GOAL—– TO  SHARE INFORMATION & SPREAD HOPE——- & THE LOVE OF JESUS CHRIST!!!!!!!!!!!

BREATHING

OK—- WATCH YOUR TOES—– I’M ABOUT TO STEP OFF OF MY SOAP BOX NOW——– OH—– BUT BEFORE I FORGET—— ANY  MCS SISTER WHO WOULD LIKE TO SHARE THEIR MCS SYMPTOMS—- PLEASE— PLEASE— PLEASE— DO SO IN THE COMMENTS!!!!!!!!  THANKS!!!!

people-knew

ACCEPT

NEIGHBOR

JUDGE

AMEN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

FIB FACTS

THINK

I HOPE & PRAY I MADE YOU THINK TODAY!!!!!!!!!!!!!!!!!!!!!!!!!!  

LATER GATORS!!!!!!!!!!!!!!!!!!!!!!!!!!

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About sondasmcschatter

I was encouraged to start a blog as I suffer from MCS /multi chemical sensitivities & other health problems & I have helped several hundred others who suffer from MCS set up "Safe Homes" & given them encouragement & HOPE & share information & lots of laughs along the way also. When you choose to use fragrances, chemicals, or pesticides, You are not simply making a choice for yourself, You are making a choice for everyone around you!!!! What makes me an expert on MCS-- not a darn thing-- BUT have lived with it for years-& years- & have learned lots the HARD WAY-- by experience!! And want to give others help & HOPE & encouragement -- as I know there are not many who understand what it is to live with this illness- & ALL THAT GOES WITH IT!!! Internet has been my way of communication with many who we are confined to their "safe homes" all over the USA & other countries!! I have communicated with many HUNDRED by e-mail-- phone & letters & internet forums-- I hope this blog will help in a better way to share laughter-- hope & information!!! As for many are not any longer able to even leave their homes-- & communication is sooo important & sharing & encouragement & GIVING HOPE!!!
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10 Responses to OCT. 11, ’15 LOOK OUT– I’M DRAGGING OUT THE SOAP BOX!!!!!!!!

  1. Colleen says:

    Thanks Sonda for each person who listened today. I think with MCS it would be easier to list symptoms I don’t get — if I could think of one.

  2. Thinking…and that’s a good thing. Thanks, Sonda! 🙂

  3. Stephanie says:

    I hope your soap box has an amplifier. Can I jump on with you?
    I experience so many (not all) of your symptoms and experienced them long before I knew what chemical sensitivity was. Intuitively I knew that eliminating prescribed meds and other stuff would help. Your soap box helps others recognize what they can do to improve their health.

    Just another rant from me: WHY ARE MEDICAL OFFICES SO TOXIC?
    Last week I had two medical appointments and got chemically clobbered. Office #1 because the staff was so toxic.
    Office #2 because the patients were toxic. It wouldn’t have been so bad because I waited outside for my appointment until the receptionist told me they were ready. I walked into the waiting room and she said to sit down and the nurse would be out in a minute. I told her I couldn’t do that. She then asked how I would tolerate the exam room. Those extra few minutes in the waiting room trying to help the indignant receptionist understand was not good. The Dr and her nurse are amazing and understanding so it’s worth it.

    PHYSICIANS SHOULD LEARN FROM VETERINARIANS. Today I took my dog to the vet. When I walked out I thought “Why are vet offices chemically safe for me but not medical offices?” The vet staff doesn’t stink and they don’t use air fresheners in the office.

    Thanks for letting me rant. 🙂

    • STEPH—- I LOVE WHEN YOU JOIN ME ON THE SOAP BOX!!!!!!!!!!!!!!!!!!!! AND YOU ARE WELCOME ANY TIME– ANY TIME–& I KNOW— I TOTALLY AGREE 1,000 %!!! EVEN MY DOCTOR ED WHO HAS SAVED MY LIFE SEVERAL TIMES — STILL WEARS STINK— & SO DOES HIS DAUGHTER & WIFE WHO ALSO WORK IN THE OFFICE!!!! YOU WOULD THINK THEY WOULD BE THE FIRST TO STOP THE STINK & HELP THEIR OWN HEALTH!!!!!!!!!!!! IT JUST TOTALLY SHOCKS ME—- WHEN PEOPLE SHOULD KNOW BETTER— & I BELIEVE THEY DO KNOW BETTER——– AND YES HIS OFFICE STINKS WITH PERFUME— ETC ETC– ALL THE TIME——- NOW I HAVE SEVERAL MCS SISTERS WHO SAY THEIR DOCTOR’S OFFICE IS FRAGRANCE FREE——- ONE OF OUR MCS SISTERS WHO WORKS PART TIME FOR A NATURAL DOCTOR SAYS THEIR OFFICE IS TOTALLY FRAGRANCE FREE—— WOULDN’T THAT BE WONDERFUL!!!!!!!!!!!!!!! WELL BEFORE I STEP BACK UP ON MY SOAP BOX—- I’LL JUST SAY THANKS FOR YOUR COMMENTS ALWAYS—- HUGS– ALWAYS A JOY TO HEAR FROM YA— LOVE YA—- LATER———-

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