QUOTE:”What are your suggestions for accommodating a person with a disability — specifically MCS? If you wear fragrances would you be willing once or twice a month to not wear them so someone could participate in the group? The suggestion was also made that basically I could do things for the group but not with the group. What are your feelings on that? The accommodations I have asked for would take no more money — in fact they would be cheaper. There might be times that we would work with “the public”. Do you feel it would appropriate/inappropriate to state the preference for a fragrance-free event so that all community members could participate? Or is it acceptable that some people who passionately want to help would be excluded if others chose to not request fragrances not be worn? Some people might not comply and still wear it but I believe many would comply — what do you think?
Thank you for your suggestions.”
I WOULD LOVE TO HEAR OTHER PEOPLE’S SUGGESTIONS–ON THIS ONE– IF I HAVE EVEN ASKED PEOPLE NOT TO WEAR FRAGRANCES INTO MY MCS SAFE HOME– THEY WEAR THEM & SAY THEY DON’T HAVE ANYTHING SCENTED ON!!!! I THINK PEOPLE ARE SO CONDITIONED TO USE STINKING KILLING TOXIC CRAP– THEY DON’T EVEN THINK ONE THING ABOUT IT– THEY DON’T EVEN SMELL THE FRAGRANCES ANY MORE– BECAUSE THEY USE SO MUCH TOXIC CRAP ALL THE TIME– & MOST OF MY FAMILY THAT I ASKED OVER THE YEARS– JUST LAUGHED AT ME– TALKED BEHIND MY BACK– MADE A JOKE OF IT– OR HAD NO CLUE THAT IT COULD BE LIFE OR DEATH TO ME!!!!!!!!!!!! PEOPLE USE SCENTED SOAP & FABRIC SOFTENERS– HAND LOTION– BODY LOTION– HAIR PRODUCTS–PERFUME– SCENTED SOAP– SCENTED SHAVING CREAM & AFTER SHAVE & THE LIST GOES ON FOR EVER— & IT IS ON THEIR CLOTHES– IT IS IN THEIR HOMES– THEY BREATH IT ALL THE TIME & DON’T EVEN SMELL IT ANYMORE!!! AND JUST BECAUSE THEY DIDN’T PUT ON PERFUME THAT DAY– IT IS STILL ON THEIR CLOTHES– ETC ETC ETC–I HAVE NEVER FOUND A WAY TO WIN THIS BATTLE– SO I AVOID THINGS ALL I CAN– & I NO LONGER LIVE A “NORMAL LIFE” AS PEOPLE ARE CONDITIONED TO WEAR TOXIC KILLING CRAP– & THEY DON’T EVEN SMELL IT ANY MORE– OR THINK TWICE ABOUT IT– & THINK WE ARE NUTS– BECAUSE WE CAN SMELL THE TOXIC KILLING PRODUCTS THEY ALL ARE WEARING– & DON’T HAVE A SINGLE CLUE IN THE WORLD THAT IS WHAT IS MAKING THEM ILL ALSO!!!!!!!!!!!!! I WOULD LOVE TO HAVE SUGGESTIONS THAT WORKED!!!!!!!! IN THE OVER 40 PLUS YEARS THAT I HAVE FOUGHT HEALTH PROBLEMS BECAUSE OF TOXIC CHEMICALS — I HAVE NOT FOUND AN ANSWER!!!!!!!!!! EVEN THOSE WHO THINK THEY HAVE NO SCENTS– ARE LOADED WITH TOXIC CHEMICALS!!!!!!!! I TRY WITH ALL THE KNOWLEDGE I HAVE TO EDUCATE– & INFORM– ETC ETC– BUT PEOPLE HAVE BEEN CONDITIONED TO USE TOXIC CRAP– & IT IS TOO HARD FOR THEM TO STOP– IT SEEMS– THE SAME AS IT IS FOR THEM TO TAKE CARE OF THEIR OWN HEALTH– & EAT PROPERLY– RID THEIR LIVES OF THE TOXIC THINGS THEY USE & EAT– & CLEAN WITH — LAUNDRY WITH ETC– MOST WANT A QUICK FIX– FAST FOOD– ETC ETC— I HAVE HAD PEOPLE TELL ME IT IS TOO MUCH WORK TO CHANGE!!! BUT THEY WILL BITCH & MOAN & GROAN ABOUT THEIR OWN HEALTH PROBLEMS– THAT YOU KNOW STEM TOTALLY FROM THE TOXIC CHEMICALS THEY USE– THE TOXIC FOOD THEY EAT– & THEIR LIFESTYLE– BUT IT IS TOO MUCH WORK TO CHANGE IT– SO THEY GO TO THE DOCTOR & LOAD UP ON THE TOXIC CHEMICAL DRUGS– TO TREAT THE SYMPTOMS– INSTEAD OF LIFE CHANGE!! ALL WHO HAVE MCS I AM PREACHING TO THE CHOIR—– BUT I DON’T KNOW THE ANSWER– & I HAVE TRIED EVERYTHING I KNOW HOW TO DO FOR OVER 45 YEARS NOW!!!!!!!!!!!!!!!!!!!!!
I recently attended a meeting about improving my hometown. Since I didn’t know everyone that would be there ahead of time, I knew I would be dealing with some people wearing fragrances. Once the email list was made I sent out a mass email asking for people to accommodate my disability by not wearing scented products such as perfume/cologne, lotion, body wash that day — switch pens/pencils for markers — and wear clothes that are not strongly scented or were washed in unscented laundry soap. Essentially, I asked for a Fragrance-free policy.
I’ve only received emails from 3 people. One has already gone fragrance free when around me and said they would do any thing they could to help. The other two didn’t directly decline to help but want me to brainstorm and discuss what other groups have done to accommodate people with MCS.
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